We have been home from the hospital now for 2 weeks. Our stay there is one I never want to do again. Surgery went well and quick. There were three other families there with their children having surgery and I formed a bond with these people just through looks. These people who I had never meet knew exactly how I felt. There is a special waiting area for families going through our situation. You watched as they got updates on their children and sometimes it was smiles and other times it was tears. These were the same updates we got with Brooklynn, some good and some not so good. Our biggest scare was the night after surgery in the the ICU. She was given 2 doses of pain medication and was unable to breath on her own. Tommy and I sat there as we watch her vitals drop rapidly. I cried as I watched thinking how I hadn't been able to hold her and touch her in two days. The Dr.'s and nurses helped her to where she began to breath on her own. We spent 5 nights in the ICU and then were moved to a room. The first night was one of the hardest. She cried for 3 hours. She was given Tylenol for pain and it wasn't working. She went from being on IV's for pain to oral Tylenol. I asked that the Dr. come and look at her. He then asked me what I thought was wrong with her and I lost it. I explained to him that I am not a doctor and I wanted to know what he thought was wrong her. It was not a pretty situation for anyone. She finally fell asleep. She next morning she was hoarse from all the crying. We spent another 2 nights as they slowly weaned her off oxygen. Eight days after surgery we were on our way home. Yes home. The first few days were rough. They told us she has reflux and is on the max dose. This they thought was the cause of long periods of crying. As each day passes things have improved. She has started to smile, giggle, and almost roll from back to tummy. She has also found her toes, it's so cute. She has also moved to her own room and is sleeping in her crib. I can't believe it! We go back to Houston Thursday and we hope everything will continue to look better. Her last x-ray didn't look awesome but not worse. My praying knees are not weak.
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