We just got home from Texas Children's. Brooklynn lost weight which is a big concern. She is 7lbs 1oz 10 weeks. However, on the bright side the new medication seems to be working, her lungs were less congested than last week after taking new chest x-rays. While we can not add any new meds we are going to try our last two resources. One, adding a MCT oil which will add 3 more calories per ounce into her formula. This will give her 30 calories per ounce. We will try this for 2 weeks. Our last resource is a feeding tube. I don't know how long we would have to try this. I am not a doctor or nurse, I'm a teacher, and having to insert and remove a feeding tube seems really scary to me. The Dr. can not take her case to the board of surgery without trying "everything possible". This did not sit well with me but I don't know what other option we have. He did say if there was something wrong before 2 weeks then to bring her in earlier. Once again, how an I suppose to know if there is something wrong?? I guess I stick with the "mommy feeling". He was pleased with her heart rate and rate of breathing. He did not think she was in any discomfort. Great news, we get her to Dallas tomorrow! Can't wait to show everyone our angel!!