We made it to Arlington last night. Brooklynn did great in the car. It took a little longer than normal to get here since we stopped and fed her. We also brought Lucy, who did great too, who needed to go for a walk. But we made it! On the drive here I couldn't help but think I needed to call her Dr. at Texas Children back. I am not ok with waiting 2 weeks to see if the oil is going to help her. I can't watch her get worse. I won't let it happen. With all the medications she is on she should be getting better not going backwards. I called this morning with my concerns and that I would like him to take her case to the board of surgery now. They called back this afternoon and he will take her case Monday morning.