Tuesday, March 22, 2011


Today we had our last visit with Dr. Sapire at TCH until after surgery. Our visit was ok, not great, but ok. She has gained an ounce in two weeks. On their scale she is 8lbs 4oz. We were hoping for a bigger gain but it's not backwards. Brooklynn just feels so heavy these last few days. She had another set of chest x-rays done and they looked good. The medicine is limiting the amount of blood that is going into her lungs. The good news is that she is stable and healthy for surgery. She will be admitted April 4th and the surgery is April 5th. I originally thought the surgery lasted 8-9 hours but if there are not any complications it could be 4-5 hours. That was a big relief for me. Two weeks from today will be her "heart day" which I know we will get to celebrate every year! I just wanted to thank all my family and friends for your support. I am so overwhelmed by the love I feel from others. Here is a 3 month picture taken by our dear friend Heather!

1 comment:

  1. Thinking of you and your family! One day soon your sweet butterfly will have her wings! She is just beautiful! Can't wait for happy heart day!! Love ya!

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