Wednesday, March 30, 2011
I have 4 more days with my angel before she gets her heart fixed! I am trying not to think about it, I get all teary eyed when I do. I am trying to enjoy every moment I have with her. We have been on walks all week. We go for about an hour, it's the only thing lately that seems to sooth her. She has not been wanting to eat and screams, yes screams, when we put the bottle to her mouth. I have never heard her make those noises before. Sometimes she starts screaming for no reason! I am going to give it the rest of today and tomorrow and if things don't improve I am going to take her to the Dr. She doesn't have a fever but I'm thinking maybe her ears are bothering her. I really have no idea! I am crossing my fingers that she is just being stubborn because if she is sick it could delay surgery. Ms. Cheryl came over this morning for a weight check and Brooklynn has gained 2 oz since last week. She is now 8lbs 10oz on her scale. She has been growing in length and is now 22 inches!
Last weekend we were able to meet several families with D.S. babies. Many of the children there also had to have their hearts repaired. I found that to be extremely helpful. We now have an idea of what to expect. I wish that this is still something we didn't have to prepare for but I can't change that. I am so ready to just enjoy my baby with a healthy heart!
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What a great network of people to be able to hear their stories. Comforting to know so many other families have had success with the surgery. I know Brooklynn will have the same. Stay strong. You, Tommy and Brooklynn are all in our prayers. Love, Jeannie
ReplyDeleteI wrote a little something a week or two ago on your care page but it didn't seem to go through. We have been reading all your updates; you've been doing such a great job keeping all of us informed. We've felt your pain and heartache and, yet, admired your strength. We contine to pray for all of you and we will be asking for special prayers during Brooklynn's surgery.
ReplyDeleteLove & God bless,
Mike & Mary Jeanne